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Don't Let Preconceptions Stop You
By
Joan Wright

Norwell - Caregivers often put everyone else’s needs ahead of their own; sometimes to the total neglect of their own health. But if the caregiver isn’t well, what happens to the person for whom they care? Support is so necessary in the caregiver’s life.


So if you are a caregiver, or know one, consider knocking down the excuses that stop you from getting help and this year and tap into some support.

I’m not a group person. That’s what we hear sometimes when we suggest that family caregivers join a support group. The idea of exposing one’s emotions to total strangers can be daunting. My own father uttered the very thing while trying to care for my mother with Alzheimer’s. Yet after finally giving it a try, he credited the group with giving him guidance and encouragement to access options and make some difficult decisions about her care.

I don’t want to listen to other people’s problem; I have enough of my own. Not an unreasonable statement, but sometimes the answer to one’s concerns is in the telling of another’s. In a recent support group meeting, I watched and listened to one seasoned caregiver share her experiences with another who is just beginning.

Both caring for husbands with Alzheimer’s but on opposite ends of the journey, the seasoned caregiver knew exactly how the other was feeling. She compassionately offered insights that might help the other woman avoid the pitfalls she had encountered. No one could have said it with greater empathy, truth and kindness.

I can’t see how a group can help. Caregivers are the best resources for other caregivers. They’ve been there; tried that; know what might work and admit what certainly won’t. They’re more than willing to share techniques, tips and tools. Group facilitators are typically professionals with expertise in the respective subject area and trained in group dynamics and facilitation. They offer assistance, education and referral to current research, care providers and a host of support systems. They’ll also keep folks on topic and the discussion on track so that group meetings are meaningful and helpful.

I don’t have time for a group. When you’re a caregiver, you are often stretched at both ends. So going to a group is just one more obligation, task, responsibility. How can you possibly take on more? The irony is in finding the time to care for yourself; you become better at caring for others. Many caregivers reveal that making time for the group is vital to survival; a lifeline; an oasis.

I’m not the only one feeling this way! Now this is what we most often hear when someone tries a group. Only caregivers can appreciate the brutal honesty of another caregiver. They know the frustration, the anger, and the desperation that caregivers feel when in the throes of caring for someone. Caregivers aren’t shocked by what they hear and understand the range of emotions expressed. What a relief to be able to say out loud all those feelings building up inside without any judgment by those listening! They get it!

Whether the primary caregiver or in a support role, care giving is a challenge. Groups are a wonderful way to connect with knowledge, support and camaraderie.

There are many caregiver support groups available on the South Shore; some disease- specific, some general. Local VNAs and Councils on Aging either offer groups or have lists of groups in the area. Call and connect.
 

 
About The Author

Joan Wright, CMC, a certified geriatric care manager, is a member of Norwell VNA and Hospice’s Alzheimer’s care specialty team and geriatric care management team. She co-facilitates NVNA and Hospice’s support groups for caregivers of early, mid and late stage Alzheimer’s. For more information on NVNA and Hospice and all of its programs, call (781) 659-2342 or visit www.nvna.org.
 

 


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